News

In a statement, scientists call for a shift in the way data from medical routine care are handled and for a legal basis to be created for standard data use without consent, but with an opt-out solution.

GHGA participated at the SCOG conference ‘Single Cell Omics in Clinical Applications’ with a GHGA satellite event, engaging with the single cell community for the first time.

GHGA is pleased to announce its participation in the newly formed GDI project. Within the ELIXIR-coordinated project, GHGA will enable secure data sharing of human omics data from Germany with the GDI network.

ELSA Workshop "Anonymization and Data Trusteeship" in Berlin with participation of GHGA Director Prof Eva Winkler, who gave a presentation on 'Ethical Trust Concepts in Medicine and their Implications'.

Sharing genomic data with third countries is not an easy task but very necessary for effectively advancing genomic research. Molnár-Gábor et al. explain, which supplementary measures could raise the data protection standard for international data transfers.

The Marsilius Kolleg Seminar provided an interdisciplinary perspective on how legal and technical-biological aspects interact when deciding on data processing and data protection in the health context.

Two years of GHGA, celebrated with two days full of discussions around achievements and the future direction of GHGA - bringing together the GHGA team and spokespersons for a hybrid event in Tübingen.

With a new App, GHGA aims to guide researchers when assessing original, pre-GDPR consent to see if it is sufficient to permit new data processing.

Cancer patients show a high willingness to make their clinical data available for research purposes, according to a new study. Patients demand high data security, best use of data, and information about research results obtained from clinical data.

Research institutes from five European countries - including GHGA and the DKFZ for Germany - have committed to improving the way researchers discover and access sensitive human data across national borders to enable more efficient health research.

NFDI4Health, NFDI4Microbiota and GHGA welcome the recommendations of the German Science and Humanities Council on digitisation and data use for health research and care, and drafted a joint response (German only).

In early July, GHGA met with patients to understand their perspective on GHGA governance, particularly in terms of genomic data sharing. Based on these discussions a concrete strategy for patient participation will be developed.