Next step in patient involvement: GHGA conducting focus group

For the participation in a focus group, GHGA is looking for people from 18 years who are interested in topics around the storing and processing of human genetic data. The focus group will discuss the contents, structure and design of a website addressing both persons affected by cancer or a rare disease, and the interested public. Specifically, the website covers topics around research with human genetic data including its opportunities and risks for patients.

With the focus group GHGA aims to learn about the perspectives and communicative needs of interested persons on the topic of “Sharing Human Genetic Data for Secondary Research”. The insights will be used to customize the website accordingly.

Interested persons will find more information here.